Ademhalingsproblematiek 1 Article
Anesthesie 6 Articles
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Anesthesia
- Anaesthesia Ehlers-Danlos syndrome
- Anesthetic Management of a Patient With Ehlers-Danlos Syndrome
- Anesthetic management of a parturient with Ehlers-Danlos syndrome posted for elective cesarean section
- Perioperative Management of Ehlers-Danlos Type III Syndrome Associated With Postural Orthostatic Tachycardia in Patients Undergoing General Anesthesia
- Recommendations for anesthesia and perioperative management in patients with Ehlers-Danlos syndrome(s)
- Resistance to local anesthesia in people with the Ehlers-Danlos Syndromes presenting for dental surgery
Atopisch Syndroom 5 Articles
Baarmoederverzakking 5 Articles
Chronische Pijn 5 Articles
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Chronic Pain
- Chronic pain in patients with the hypermobility type of Ehlers-Danlos syndrome: evidence for generalized hyperalgesia
- Diagnosing & Treating Pain Based on the Underlying Mechanism – ??
- Pain Management in Patients With Hypermobility Disorders: Frequently Missed Causes of Chronic Pain
- The challenges of chronic pain and fatigue
- Update in the Treatment of Chronic Pain within Pediatric Patients
Chronische vermoeidheid 5 Articles
Dunne vezel neuropatie 5 Articles
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Small fiber neuropathy
- Diagnosis and Treatment of Pain in Small Fiber Neuropathy
- Pain due to Ehlers-Danlos Syndrome Is Associated with Deficit of the Endogenous Pain Inhibitory Control
- Pain in Ehlers-Danlos syndromes: manifestations, therapeutic strategies and future perspectives
- Small fiber neuropathy is a common feature of Ehlers-Danlos syndromes
- Small fiber neuropathy is a common feature of Ehlers-Danlos syndromes
Dysautonomie 6 Articles
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Dysautonomia
- Autonomic Dysfunction – ??
- Dysautonomia and its underlying mechanisms in the hypermobility type of Ehlers–Danlos syndrome
- Dysautonomia in Ehlers-Danlos Type III
- Fast Heart Rate, Low Blood Pressure
- Managing Life with Autonomic Symptoms – ??
- The Autonomic Nervous System, Dysautonomia, and its Relationship to Cranio-cervical Instability – ??
Dystonie 5 Articles
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Dystonia
- Atlantoaxial rotatory subluxation associated with cervical dystonia
- Dystonia in the joint hypermobility syndrome (a.k.a. Ehlers- Danlos syndrome, hypermobility type)
- Ehlers-Danlos and dystonia. Positive effects of amantadine
- Ehlers-Danlos, Proprioception, Dystonia, Dysautonomy, L-Dopa and Oxgenotherapy’s Efficacy
- Unmet Needs in Dystonia: Genetics and Molecular Biology—How Many Dystonias?
Hand-, vinger-, polsklachten 5 Articles
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Hand, wrist and finger problems
- Clinical Case of Acute Non-Traumatic Hand Compartment Syndrome and Systematic Review for the Upper Extremity
- Evaluation & Treatment of Thumb, Wrist, and Arm Pain & Weakness in Hypermobile Patients – ??
- Finger orthoses for management of joint hypermobility disorders: Relative effects on hand function and cognitive load
- Hand and wrist joint problems in patients with Ehlers-Danlos syndrome
- Surgical technique: hemi-extensor carpi radialis brevis tenodesis for stabilizing the midcarpal joint in Ehlers-Danlos syndrome
Hart en vaat klachten 5 Articles
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Heart and vascular complaints
- Ehlers-Danlos with disease of the aorta and mitral valve
- Prolapse and regurgitation of the four heart valves in a patient with Ehlers–Danlos Syndrome: a case repor
- Surgical management of vascular Ehlers-Danlos syndrome and its challenges: a case report
- Vascular Complications: Types of Complications & Investigations – ??
- Vascular phenotypes in nonvascular subtypes of the Ehlers-Danlos syndrome: a systematic review
Hernia 5 Articles
- A giant inguinal hernia in a patient with Ehlers-Danlos syndrome
- A large abdominal intercostal hernia in a patient with vascular type Ehlers-Danlos syndrome: a surgical challenge
- Acute para-esophageal hernia in Ehlers-Danlos Syndrome
- Recurrent congenital diaphragmatic hernia in Ehlers-Danlos syndrome
- Recurrent ventral herniation in Ehlers-Danlos syndrome
Heupafwijkingen 6 Articles
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Hip abnormalities
- Anterior Capsule Reconstruction of the Native Hip: A Technique Guide
- Editorial Commentary: “Loose Lips Sink Ships”–But What About “Loose Hips”?
- Generalized Joint Hypermobility Is Predictive of Hip Capsular Thickness
- Orthopaedic management of the Ehlers–Danlos syndromes
- Primary Total Hip Arthroplasty in Patients With Ehlers-Danlos Syndrome: A Retrospective Matched-Cohort Study
- Sacroiliac joint fusion in patients with Ehlers Danlos Sydrome
Huidproblemen 5 Articles
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Skin problems
- Managing Skin Complications – ??
- Pulmonary Manifestations of Skin Disorders in Children
- Short Communication Open Access Skin ultrastructural similarities between Fibromyalgia and Ehlers-Danlos syndrome hypermobility type
- Skin Changes in EDS – ??
- Skin signs in Ehlers–Danlos syndrome: clinical tests and para-clinical methods
Hypermobiliteit 7 Articles
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Hypermobility
- The Relationship Between Generalised Joint Hypermobility and Autism Spectrum
- Generalized joint hypermobility, joint hypermobility syndrome and Ehlers‐Danlos syndrome, hypermobility type
- Hypermobility
- Hypermobility Plenary Session – ??
- Strengthen Your Hypermobile Core – A Home Exercise Approach for EDS, HSD, and Hypermobility – ??
- The genetic basis of the joint hypermobility syndromes
- International Perspectives on Joint Hypermobility: A Synthesis of Current Science to Guide Clinical and Research Directions
Maag Darm Lever 21 Articles
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FODMAP
- Controversies and reality of the FODMAP diet for patients with irritable bowel syndrome
- Efficacy of the low FODMAP diet for treating irritable bowel syndrome: the evidence to date
- Low FODMAP Diet: Evidence, Doubts, and Hopes
- Low-FODMAP Diet Improves Irritable Bowel Syndrome Symptoms: A Meta-Analysis
- Low-FODMAP Diet for Treatment of Irritable Bowel Syndrome
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Medische voeding (Sonde)
- Diet and Supplements – ??
- Gastrointestinal and nutritional issues in joint hypermobility syndrome/ehlers–danlos syndrome, hypermobility type
- Nutritional Approaches to Treating GI Concerns – ??
- Nutritional implications of dietary interventions for managing gastrointestinal disorders
- The Gut and Nutrition in EDS – Diagnosis and Management Options – ??
- Tube Feeding: Living With a Feeding Tube
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Prikkelbare darm syndroom
- Dr. Adam Farmer – Gastrointestinal Symptoms in EDS – ??
- Gastrointestinal involvement in the Ehlers-Danlos syndromes
- Joint Hypermobility Syndrome Affects Response to a Low Fermentable Oligosaccharide, Disaccharide, Monosaccharide and Polyol Diet in Irritable Bowel Syndrome Patients: A Retrospective Study
- Pseudo-obstruction, enteric dysmotility and irritable bowel syndrome
- The Irritable Bowel Syndrome
- Vertraagde maaglediging
Mestcel activatie syndroom 8 Articles
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Mast Cell Activation Disorder (MCAS)
- A Review of the Dermatologic Symptoms of Idiopathic Mast Cell Activation Syndrome
- Living with Mast Cell Activation Syndrome – ??
- Mast cell activation syndromes
- Mast Cell Activation Syndrome: More than “just allergies” – ??
- Mast cell disorders in Ehlers–Danlos syndrome
- Mechanisms Governing Anaphylaxis: Inflammatory Cells, Mediators, Endothelial Gap Junctions and Beyond
- Understanding Mast Cell Activation in EDS & HDS – ??
- Mechanisms Governing Anaphylaxis: Inflammatory Cells, Mediators, Endothelial Gap Junctions and Beyond
Oogproblemen - Keratoconus 6 Articles
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Ocular Manifestations
- Ehlers-Danlos syndromes and their manifestations in the visual system
- Ehlers-Danlos Syndrome and the Eye
- Keratoconus and the Ehlers-Danlos syndrome: a new aspect of keratoconus
- Ocular Manifestations and Eye Surgery Considerations in Patients with EDS and HSD – ??
- Resequencing of candidate genes for Keratoconus reveals a role for Ehlers-Danlos Syndrome genes
- The Cornea in Classic Type Ehlers-Danlos Syndrome: Macro- and Microstructural Changes
Pijnmedicatie 5 Articles
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Painmedication
- An Evaluation of the Use of Cannabis in EDS with Chronic Pain – ??
- Ehlers-Danlos Syndrome: An Analysis of the Current Treatment Options
- Pain management in the Ehlers–Danlos syndromes
- Pain Management Medical Resource Guide
- Treatment of Complex Regional Pain Syndrome (CRPS) Using Low Dose Naltrexone (LDN)
POTS 8 Articles
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Postural Tachycardia Syndrome
- Plasma proteomic profiling in postural orthostatic tachycardia syndrome (POTS) reveals new disease pathways
- Ehlers-Danlos Syndrome and Postural Tachycardia Syndrome: A Relationship Study
- Evaluation of postural tachycardia syndrome (POTS)
- Platelet Storage Pool Deficiency and Elevated Inflammatory
- Postural tachycardia syndrome – Diagnosis, physiology, and prognosis
- Postural tachycardia syndrome: current perspectives
- The Relationship Between Hypermobile Ehlers-Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS)
- Platelet Storage Pool Deficiency and Elevated Inflammatory
Psychische klachten 40 Articles
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ADHD
- Editorial: Neurodevelopmental, neuropsychiatric and psychosocial correlates of joint hypermobility and related disorders
- Almost Half of EDS/HSD Patients Have Psychiatric Disorders, Canadian Study Finds
- Attention-deficit/hyperactivity disorder, joint hypermobility-related disorders and pain: expanding body-mind connections to the developmental age
- Living with ADHD, EDS, and HSD – ??
- Prevalence of ADHD and Autism Spectrum Disorder in Children with Hypermobility Spectrum Disorders or Hypermobile Ehlers-Danlos Syndrome: A Retrospective Study
- Supporting People with ADHD – ??
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Angsstoornissen
- Editorial: Neurodevelopmental, neuropsychiatric and psychosocial correlates of joint hypermobility and related disorders
- A Qualitative Study Exploring the Psychosocial Issues in Patients with Vascular Ehlers Danlos Syndrome
- Anxiety and joint hypermobility: An unexpected association
- EDS, HSD, and Psychological Health – ??
- Joint hypermobility is also associated with anxiety disorders in the elderly population
- Relationship of rare disorder latent clusters to anxiety and depression symptoms
- Risperidone for the Management of Treatment-Resistant Anxiety in a Patient with Ehlers-Danlos Syndrome: A Case Report
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Autisme
- A Cohort Study Comparing Women with Autism Spectrum Disorder with and without Generalized Joint Hypermobility
- The Relationship Between Generalised Joint Hypermobility and Autism Spectrum
- Editorial: Neurodevelopmental, neuropsychiatric and psychosocial correlates of joint hypermobility and related disorders
- Autism, EDS & HSD – Dr. Carolina Baeza-Velasco – ??
- Autism, Joint Hypermobility-Related Disorders and Pain
- EDS, Autism, and Me – ??
- The Relationship between Autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders
- Burnout
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Depressie
- Editorial: Neurodevelopmental, neuropsychiatric and psychosocial correlates of joint hypermobility and related disorders
- A Qualitative Study Exploring the Psychosocial Issues in Patients with Vascular Ehlers Danlos Syndrome
- Medication for Anxiety and Depression – ??
- Recurrent Depression and Borderline Personality Disorder in a Patient with Ehlers-Danlos Syndrome
- Relationship of rare disorder latent clusters to anxiety and depression symptoms
- The value of identifying emotional dimensions in EDS/HSD – ??
- Warning Signs of Depression in People With EDS
- Paniekstoornissen
- PTSD
- The Relationship Between Generalised Joint Hypermobility and Autism Spectrum
- A Qualitative Study Exploring the Psychosocial Issues in Patients with Vascular Ehlers Danlos Syndrome
Revalidatie 3 Articles
Schouderproblemen 1 Article
Slaapproblemen 5 Articles
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Sleeping issues
- Pain and sleep quality in children with non‐vascular Ehlers–Danlos syndromes
- Prevalence of Obstructive Sleep Apnea in Joint Hypermobility Syndrome: A Systematic Review and Meta-Analysis
- Sleep-disordered breathing in paediatric setting: existing and upcoming of the genetic disorders
- Sleep Disorders and Their Management in Children With Ehlers-Danlos Syndrome Referred to Sleep Clinics
- Sleep disorders in patients with postural tachycardia syndrome: A review of the literature and guide for clinicians
Spinale Manifestatie 12 Articles
- Migraine/Clusterhoofdpijn
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Spinal Manifestations
- Brain Injuries in EDS and HSD – ??
- Extradural Compressive Spinal Cerebrospinal Fluid Leak in Ehlers-Danlos Syndrome
- Neurological and spinal manifestations of the Ehlers-Danlos syndromes
- Neurological manifestations of Ehlers-Danlos syndrome(s): A review
- Neurosurgical management of hereditary hypermobility connective tissue disorder
- Underlying Ehlers-Danlos syndrome discovered during neuro-ophthalmic evaluation of concussion patients: a case series
- Diseased filum terminale as a cause of tethered cord syndrome in Ehlers Danlos syndrome: histopathology, biomechanics, clinical presentation, and outcome of filum excision
Stem-, Spraak- en Slikproblemen 6 Articles
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Speech, swallowing & narrative difficulties
- Cognitive impairment in women with joint hypermobility syndrome/Ehlers-Danlos syndrome hypermobility type
- ENT Complications and Management – ??
- ENT Symptoms and Treatment for EDS and HSD – ??
- ‘I Have Had to Stop Singing Because I Can’t Take the Pain’: Experiences of Voice, Ability, and Loss in Singers With Hypermobility Spectrum Disorders
- Laryngological presentations of Ehlers-Danlos sundrome: a case series of nine patients from two London tertiary referral centers
- Phenotypic variability in developmental coordination disorder: Clustering of generalized joint hypermobility with attention deficit/hyperactivity disorder, atypical swallowing and narrative difficulties
Tandheelkunde 10 Articles
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Dental care
- Dental Complications in EDS – ??
- Periodontal manifestations of Ehlers-Danlos syndromes: A systematic review
- Prepubertal Periodontitis in a Patient with Combined Classical and Periodontal Ehlers–Danlos Syndrome
- Rare Diseases with Periodontal Manifestations
- The key role of the dental practitioner in early diagnosis of periodontal Ehlers-Danlos syndromes: a rare case report of siblings
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Kaakproblemen
- EDS and TMJ – ??
- Evaluation of Temporomandibular Disorders and Comorbidities in Patients with Ehler-–Danlos: Clinical and Digital Findings
- Oral and mandibular manifestations in the Ehlers–Danlos syndromes
- Overview TMJ and EDS – ??
- The effect of Ehlers-Danlos syndromes on TMJ function and craniofacial pain
Tietze 5 Articles
- Clinical presentation and chiropractic treatment of Tietze syndrome: A 34-year-old female with left-sided chest pain
- Malignant lymphoma presenting as Tietze’s syndrome
- Painful Chest Wall Swellings: Tietze Syndrome or Chest Wall Tumor?
- Tietze’s syndrome: A review of the literature
- Ultrasonographic assessment of local steroid injection in Tietze’s syndrome
TOS (Thoratic Outlet Syndroom) 5 Articles
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Thoracic Outlet Syndrome (TOS)
- Diagnosis of thoracic outlet syndrome
- Outcome of Surgical Treatment for Thoracic Outlet Syndrome: Systematic Review and Meta-Analysis
- Thoracic Outlet Syndrome
- Thoracic Outlet Syndrome: A Comprehensive Review of Pathophysiology, Diagnosis, and Treatment
- Thoracic outlet syndrome: definition, aetiological factors, diagnosis, management and occupational impact
Urologische klachten 5 Articles
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Congenital Disorders
- Congenital Disorders of the Human Urinary Tract: Recent Insights From Genetic and Molecular Studies
- Disorders of Bladder Function – ??
- Intraperitoneal bladder rupture in a young child with vascular Ehlers-Danlos syndrome
- Pelvic organ prolapse and stress urinary incontinence: A review of etiological factors
- Urogynecology in EDS
Voetafwijkingen 10 Articles
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Hallux Valgus
- Custom-Made Foot Orthoses Reduce Pain and Fatigue in Patients with Ehlers-Danlos Syndrome. A Pilot Study
- Footcare in hypermobile Ehlers-Danlos syndrome
- Juvenile and Adolescent Hallus Valgus
- Pediatric Flat Foot
- Podiatric surgical considerations in the ehlers-danlos patientrgical considerations in the ehlers-danlos patient
- Piëzogene papels
Webinar 2 Articles
Wondgenezing 5 Articles
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Wound healing
- Abnormal wound healing related to high-dose systemic corticosteroid therapy in a patient with Ehlers-Danlos syndrome benign hypermobility Type
- Ehlers-Danlos syndrome and wound healing
- Possible Simple Measures for Complex Wound Healing Problems in Ehlers-Danlos Syndrome
- Possible Simple Measures for Complex Wound Healing Problems in Ehlers-Danlos Syndrome
- Treatment of the wide open wound in the Ehlers-Danlos syndrome
Zwangerschap 9 Articles
- Analysis of obstetric complications and uterine connective tissue in tenascin-X-deficient humans and mice
- Aortic complications in pregnancy: the less remembered chapter— a narrative review
- Considerations for lactation with EhlersDanlos syndrome: a narrative review
- Hypermobile Ehlers-Danlos Syndrome during pregnancy, birth and beyond
- Pelvic Girdle Pain, Hypermobility Spectrum Disorder and Hypermobility-Type Ehlers-Danlos Syndrome: A Narrative Literature Review
- Pregnancy and Delivery in Ehlers-Danlos Syndrome (Hypermobility Type): Review of the Literature
- Pregnancy-related deaths and complications in women with vascular Ehlers–Danlos syndrome
- Presymptomatic genetic analysis during pregnancy for vascular type Ehlers–Danlos syndrome
- Spinal Anaesthesia for Cesarean Section in a Patient with Vascular Type Ehlers-Danlos Syndrome
